31 March 2010

Storm clouds they gather

I promised to post about what is next. I have been told that I am not to expect to be able to feel the bottom of my leg and my foot anymore. This has great implications...I will again need to learn to walk, which should be possible as I still have the strength. This problem and several other potential problems like bladder retention etc. are being caused by a tumor on my tailbone which in a month's time has more than doubled in size. This tumor has has its maximum share of radiotherapy and therefore doctors are looking for another way to reduce the cancer mass. Each possible solution in very invasive and a possible threat as this area of the body is an meshwork of intricly woven arteries and nerves. It's a very specialistic field for neurosurgeons...they are looking into the possibility to operate on me. There are two more ways to try to treat this, heat therapy (burning) and embolization (blocking the bloodvessels).

My
life as I know it is going to drastically change. Right now I am overwhelmed by the speed at which things have gone (Thyroglobulin count from 6K to 20K in one month). Obviously I am worried and wondering if I am counting my last days....My doctors don't seem to think so because they want me up and walking again and are working very hard to find the right solution for me. My attitude the last 3 years is paying off, herds and herds of doctors in 3 different hospitals are working together, listening to me and providing the best care. I am scared.

First thing in the morning is radiation therapy of TH6. In the course of the day I hope to hear what the dream team has decided.
Telling my Marcus, my family and friends about this hurts so much.


6 comments:

Unknown said...

Aisha, your on my mind constantly. Is there ANYTHING I can do for you? All my love, Helena

Maroeska said...

Het is een strijd.. Maar met jouw positieve houding ga je het redden. Via Twitter heb ik je leren 'kennen'. Raar hoe je dan zoveel met iemand mee kan leven. Elke ochtend even checken hoe het gaat, is er nieuws?

Ik denk aan je..
Mroez (Maroeska)

Anonymous said...

Wat ben jij een knokker, mooie lieve Aisha!!! Ik ken je ook alleen nog maar van Twitter, maar bewonder je moed, je kracht, je openheid en je humor. Heel veel liefde en kracht gewenst voor jou en je geliefden.

Peggy Schreuder said...

Hoi lieve Aisha,

Ik moet de hele tijd aan je denken. Als je het leuk vindt en de puf er voor hebt dan wil ik binnenkort een keer komen. Laat het me ook even weten als we iets voor Kiara kunnen doen. Misschien vindt ze het leuk om een keer iets met Yinka af te spreken

Lieve kusjes,

Peggy

Unknown said...

dear aisha, i can completely feel your anxiety and stress in your writing even though i can also tell you are being very strong and trying to write objectively. i feel for you and your family, and i have to say i felt great hope reading the thoughts of your doctors trying to figure out the best way to get you walking sooner. anthony becs zara and moi in singapore are all thinking of you with heavy yet hopefuly hearts, you are a survivor and don't think otherwise! xxx jocelyn

Unknown said...

ik ben je nu net aan het volgen op twitter en ben onder de indruk van wat jij moet doorstaan! Heel veel kracht en liefde toegewenst lieve Aisha